As I look at my mother, feeble and weak, I do not see the person she was, the person she would want to be remembered as, or the memory she would want to represent her, in her last days. I see a kind, gentle, elderly person with infant like qualities. She is mesmerised by the TV, has the reflexes one is born with, and looks at everything presented to her, with the fascination that a child has when seeing something for the first time. She does not realize that she is married to the man who sits at her side everyday for hours. She does not know that the others that frequent her bedside are her children. She does not distinguish between family, and nurses or doctors. She has no recollection that she was once an avid reader, a swimmer, a daily church goer, or a loved grandmother. Unable to move her own tiny body to sit up, she relies on a Hoyer lift to move her from the bed to a chair. Her accomplishments now, are comprised of, sitting in a chair for a few hours a day, opening her eyes to look at visitors for a few briefs moments, moving her right arm an eighth of an inch, and raising her left arm to feel the concavity that exists where her skull once was. She will never again, walk, talk, comprehend, or understand communication as we know it. While we talk about all the fantastic foods she used to prepare, she has no interest, and quite possibly, no understanding of a solid substance. She has not been able to eat or drink anything, whatsoever, for seven weeks, not even a sip of water, and yet she appears to still know what it is like, to experience thirst. She no longer has the ability to swallow, yet she can still smell what we are unable to give her. She can no longer eat. All she knows in her new state, is the feeding tube that pumps liquid sustenance into her body. Her hard working hands will never again make the wonderful foods, she was so well known for. She will never again, play the piano, take a walk, talk on the phone, stand up, hold a conversation or say the rosary. She does not even know how many children she has. She has no idea that she was a class valedictorian when she graduated from high school. She is now diminished to a small remnant of the magnanimous person she was. She does not remember her life...she has no recollection of all that she has done, what is important to her, or what she believes in. She is no longer the person she was, but she is alive. She can open her eyes and smile with parts of her mouth. She can laugh, she does know what is comfortable and what is painful. She does not have the moisture in her body to produce tears, yet she feels the impulses that draw tears. She feels frustration and anger toward her predicament, yet can not find or form the words to tell us what she wants. She is the equivalent of a comma in a sentence. At times she makes sense, but stand alone, without structure, and she is just a symbol that exists. A small mark that signifies a break in thought...and that is what her existence is comprised of, broken thoughts.
Saturday, February 23, 2013
Saturday, January 12, 2013
The Survivor
I am but a shell harboring a body
I am but a mind unaware of it's purpose
I am but a patient who once had a life
I am but a mother who has now become a child
I am but a brain which has lost what it once had
I am but a human who survived but does not live
I am but a future reverting to it's past
I am but a mind unaware of it's purpose
I am but a patient who once had a life
I am but a mother who has now become a child
I am but a brain which has lost what it once had
I am but a human who survived but does not live
I am but a future reverting to it's past
Friday, January 11, 2013
Written in Tears
I can not speak
the words are interned in my throat
unable to move
my body trembles with the thoughts and words, that I can not speak
I am terrified
The tears escape as the words remain
but if you look closely
the words are there
written in the tear stained paper
the words are interned in my throat
unable to move
my body trembles with the thoughts and words, that I can not speak
I am terrified
The tears escape as the words remain
but if you look closely
the words are there
written in the tear stained paper
The Fall
These strangers become family to some extent
we grow to expect to see them each day
and without words we share the most personal and intimate feelings
our eyes and bodies express what our mouths can not vocalize
and as each comes and goes, we hope for good news for one of us
but secretly we want it for ourselves
and as one families' nightmare comes to a horrendous crescendo
another new family appears in the hall
the same tumultuous journey awaits them
with one good day, comes three days of hell
with each moment we become more and more afraid to believe
afraid to have faith because the disappointment grows in severity
the higher we go the more damaging the fall
and it was just that, which brought us here
the fall
we grow to expect to see them each day
and without words we share the most personal and intimate feelings
our eyes and bodies express what our mouths can not vocalize
and as each comes and goes, we hope for good news for one of us
but secretly we want it for ourselves
and as one families' nightmare comes to a horrendous crescendo
another new family appears in the hall
the same tumultuous journey awaits them
with one good day, comes three days of hell
with each moment we become more and more afraid to believe
afraid to have faith because the disappointment grows in severity
the higher we go the more damaging the fall
and it was just that, which brought us here
the fall
Tuesday, January 8, 2013
Waiting
Waiting
Clusters of strangers sharing a space
Each story is different and yet we have all arrived at this juncture
Our paths cross and our eyes lock for brief moments
and we see the same sadness
the same struggle
the same vacancy
and we wait
The constancy of the routine familiar and foreign at the same time
and we wait
Each desperate to see some improvement, some change, something
that represents hope
to keep the flow of energy alive
and we see tears, we feel tears serrating our hearts with their cold curves as they slide throughout our bodies
the painful ache of agony
for our loved ones, ourselves and these strangers we have come to share space with
and we hope
that our next tears will be tears of joy
at the sight of something
Clusters of strangers sharing a space
Each story is different and yet we have all arrived at this juncture
Our paths cross and our eyes lock for brief moments
and we see the same sadness
the same struggle
the same vacancy
and we wait
The constancy of the routine familiar and foreign at the same time
and we wait
Each desperate to see some improvement, some change, something
that represents hope
to keep the flow of energy alive
and we see tears, we feel tears serrating our hearts with their cold curves as they slide throughout our bodies
the painful ache of agony
for our loved ones, ourselves and these strangers we have come to share space with
and we hope
that our next tears will be tears of joy
at the sight of something
Saturday, January 5, 2013
Friday, January 4, 2013
Solid Hearts
Walks are a daily ritual that my dog Stella and I have come to relish
And today as we walked, we came upon something that gave me pause
and made me smile
and while I gazed at the wonder of a random and unexpected hoof print in the frozen earth
my companion came to see what had me so enraptured
and while I marveled at the sight
she stumbled into that which held me captive
and again it stirred a pondering that lead to inspired insight
and as her presence grazed the print
a swaddling of sentiment enveloped me
and as her paws met the hoof print that was frozen in the earth,
it gave me pause again
for it was then, that the message was clear...
she fell into my heart and has filled it
with the simplest of pleasures in the most extraordinary way
And today as we walked, we came upon something that gave me pause
and made me smile
and while I gazed at the wonder of a random and unexpected hoof print in the frozen earth
my companion came to see what had me so enraptured
and while I marveled at the sight
she stumbled into that which held me captive
and again it stirred a pondering that lead to inspired insight
and as her presence grazed the print
a swaddling of sentiment enveloped me
and as her paws met the hoof print that was frozen in the earth,
it gave me pause again
for it was then, that the message was clear...
she fell into my heart and has filled it
with the simplest of pleasures in the most extraordinary way
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